Travelling with illnesses: dealing with hot weather

Help for sufferers, Posts, Travel, Travelling with illnesses series

A big issue with travelling abroad is that, often, you are visiting an environment which is different to your own. The problem with this? Drastic temperature changes can seriously impact your health, and moving from your usual climate to somewhere super hot is pretty much a recipe for disaster. These are a few things I do to minimise its effect on my fibro:

1. Drink plenty of water.

Hydration is key to dealing with heat, so make sure you top up constantly throughout the day. Rehydration sachets also come in handy if you start to fall behind, and consider carrying a water bottle when you are out and about to avoid sweating out too much H2O when you don’t have access to drinks.

2. Battle the chub rub.

Those of us who suffer from chafing; whether it be in the thigh area, under the arms, or somewhere else altogether; know just how much of a nightmare hot weather can be. There are a few tried and tested methods out there that can help prevent the dreaded chub rub, and it’s worth investing before you go to tackle the problem before it starts. I like to put a layer of roller deodorant on my affected areas, and then top this with a good coat of talc. Sometimes, though, it’s easier to play it safe by making sure there’s a layer of fabric between the two points of contact (I like long, floaty trousers for this).

3. Fatigue.

Fatigue is pretty much a constant when it comes to fibromyalgia, but this can spiral out of control when the temperature comes into play. Make sure you have plenty of rest, seek shade as much as possible, and consider a decent fan as back up. Don’t forget to make use of your usual fatigue coping techniques, as these will help to keep your day to day problems at a minimum.

4. Fainting.

I don’t know about you, but I have a bad habit of fainting when I get too hot or too cold. Try not to over do things, and pace yourself as much as possible. It is best to have someone to accompany you if you feel like this may be a problem, and if you do start feel faint, alert someone nearby before lowering yourself to the ground. The aim is to get blood flow to your brain, so laying on a level surface, putting your head between your knees, or even putting your legs up against a wall, are all techniques which help with this. Stay low to the ground to avoid heavy falls (if you do happen to lose consciousness, you don’t want to hit your head as this may cause concussion, so preventing falls is very important). When you feel a little better, make sure you have some water and something sweet to boost your blood sugar. (N.B: a good excuse to eat chocolate!)

5. Clothing.

It is important for any vacation that you pack the right clothing for your destination, but it is especially so when you have an illness to think about. Personally, my fibro makes me very sensitive to temperature change, so I find it vital to pack the right clothes for my holiday. Try comfortable, loose fitting clothes in light colours in order to aid ventilation and reflect sunlight. However, remember that all climates are prone to temperature variation, and you may find an unsuspected cold period knocks you off course. Thus, always pack a few warmer layers that you can play about with depending on the forecast. Furthermore, hot weather often results in other problems, think: sweating, chafing, heat rashes. Make sure you choose breathable fabrics which are itch- free and easy to wear, and avoid piling up on accessories. For all of my ‘feminine’ followers, I avoid jewellery in case of theft or loss, but also because hot metal and skin is NOT a good combo. A sunhat and glasses will suffice during the day, and one multipurpose necklace and a set of earrings add glamour for a night out. Finally, don’t forget to bring comfortable shoes, especially if you plan to do lots of walking, so as to avoid blisters and athlete’s foot. A simple pair of worn in pumps or sandals will do perfectly.

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What is ‘pacing’ and how can it help my fibro?

Help for sufferers, Posts, Work

Plenty of people with chronic illnesses like to talk about pacing, but if you’re newly diagnosed or have only recently started looking for advice, then you might not know what this is.

Pacing is a method of coping with the fatigue-like symptoms often associated with chronic conditions such as fibro. It involves creating a broken down or spread out routine, so that tasks can be separated into smaller, more manageable chunks. This ensures that you can concentrate longer on tasks by giving yourself small rest breaks in between.

For example, I like to split up my daily chores, study sessions, and various errands by having at least five to ten minutes of nothing for every hour or so. After a while, I have a larger break, and if I’m struggling, I will increase the frequency of my breaks. If you don’t like to sit and do nothing, try doing something easy that takes little energy (mental, physical, or otherwise) and is a distraction from your task.

(N.B: From here on it gets complicated, so you might want to skip the next paragraph if you dont fancy the heavy reading!)

The next question is this; how do you figure out your rest to work ratio? Well first of all, you need to spend some time figuring out how long you can go before you lose the will to live. This is how long you can go before you need a big break. Then, try and count how many times within this you get distracted; this is how many mini breaks you need. Spread them evenly within the time frame, and aim for between five and fifteen minutes for each break. you can alter this to your taste later, if necessary.

If all of this sounds too complicated, just remember to aim for 3:9:10 (for every 3 hours, have 9 equally spaced lots of 10 minute breaks, so every 20 minutes have a break). Or, have a 10 minute break every so often if you can’t keep count. Don’t forget as well that you can mix up the same ratio for smaller or larger amounts of time, and for every 3 hours, have at least half an hour or more to recuperate.

Most importantly, though, is to remember that you aren’t aiming to get loooaaaddss done, but to work at an efficient pace that keeps you healthy and happy. If you can’t do as much as you thought, that’s okay. Just stop for the day and adjust accordingly tomorrow.

If you like my pacing method or think you have something to input, please help us all out and let us know in the comments.

Thanks for reading!

My latest obsession

Posts, Uncategorized

So I have a confession to make…

I have a bit of an addiction to houseplants. They’re pretty, easy to look after, and university friendly. What could possibly go wrong? Well…

Here’s the thing: having fibro means that you often do silly things out of boredom, and very easily create obsessions to occupy the time when you’re stuck in bed. I got a bit of an obsession with all of the pretty houseplants that I’d seen on Tumblr and Pinterest, and it got a slightly out of hand. Every time I saw an interesting plant, I had to buy it. I spent a FORTUNE.

It doesn’t make it any better that I miss my animals whilst I’m away at university, so I’ve replaced them with a windowsill full of greenery (well I had to find SOMEWHERE to put my affections, right!?). Having plants gives me something to do when I feel well, and something to look at when I’m not. The best bit is that you can choose plants that rely on very little water, so that you don’t have to spend too much time on maintenance, especially when you’re poorly.

Anyway, house plants are pretty good for fibro sufferers (much easier than a dog) and also for tenants who aren’t allowed pets, but they can get pretty expensive. I daren’t tell you how much I’ve spent perfecting my windowsill!

If you fancy starting your own collection, look into buying cacti, succulents, and other common houseplants that require low maintenance. You can pick them up from all over nowadays, most of mine are from my local Lidl supermarket, and I’ve even got a few from the carboot. If you want a good deal, look out for the plants that look a little bit worse for ware. As long as they still have healthy growth and aren’t too far gone, you can usually bring them back to life. My favourite part about that is that the shop usually wants rid of the ones that aren’t doing well, because they are less likely to sell, so you can normally get them at a reduced price.

My favourite plant from my own personal bunch is a spider plant. It fills out the space in my room and, best of all, sprouts loads of new growths. This means that I can snip them off and pot them up, thus giving me loads of new little ones (yay!). I’m currently waiting for my ten spider plant babies to grow a little so that I can pot them nicely and send then as gifts to the people I love.

Let us know if you have any interesting hobbies that are fibro friendly, because it’s great to have an obsession when you’re stuck in bed feeling low. Also, if you have any houseplants that you care for, I’d love to hear your advice. Last but not least, don’t forget to like and comment so I know I’m posting the good stuff!

Beat back the fog in five simple steps

fibro fog, Help for sufferers, Posts

Having fibromyalgia has many a downside, but one of the most irritating (and most overlooked) issues of the condition is fibro fog. From losing your glasses (check the top of your head) to forgetting an important appointment, the fog ruins us all at some point. Here are five simple steps to get the worst of it under control…

1. Establish a routine.

If you set a daily routine, it helps to keep track of those pesky things that love to disappear, such as your glasses and keys. I like to leave my keys in the same place each day so that I know that they will definitely be there when I need them. Likewise, checking for That Important Thing every time you do a certain task can help to set up a routine.

2. Set reminders on your phone.

I ALWAYS forget to take my meds, as in, I forget my meds every. single. day. To combat this, I have two reminders set on my phone, one at my usual wake up time, and one a few hours later, just in case. Honestly, it’s the best thing I’ve ever done, and it’s prevented countless numbers of flares.

3. Invest in a diary, journal, or planner.

Planners are useful for getting down those daily events that often slip your mind, and getting a little pocket diary means that you can take it everywhere for when you need it the most. Appointments, anniversaries, contacts, and to do lists can all be jotted down, and you can even take note of any important symptoms or fibro issues that you think are important. This way, you have an ‘external hard drive’ for your brain.

4. Load up on post it notes.

If there’s something you know you will forget, there’s nothing better than a huge glowing sign to remind you. Although not quite huge or glowing, an easy trick to help you to remember something is to leave your future self a post it. They have the added benefit of being colourful, sticky, and small enough to take with you, so you can use them anywhere and anytime. Write down a quick message and stick it where you’re sure to see it (mirrors, doors, the kettle, your fave snack).

5. Learn to ‘pace’.

Pacing is a technique often used by people with chronic illnesses which allows them to function for longer. Although it primarily helps with fatigue, it is also good for curbing mental exhaustion and cloudiness. Set out daily goals with steps towards each one, but make sure that they are small and achievable with breaks in between. Remember, set yourself a limit and do not exceed it. This way, you are less likely to spur on any foggy moments that would usually be caused by tiredness.

Have you got any of your own ideas? Let us know in the comments and don’t forget to like the post so I can see that I’m not just talking to myself *awkward laughter*.