Travelling with illnesses: be a pro jetsetter

Help for sufferers, Posts, Travel, Travelling with illnesses series

So obviously travelling is a nightmare, but it gets so much worse when you’re ill. Here are a few bits of advice for next time you hop on a plane.

1. Be organised.

Before you go, gather up all your documents and get them in order, and then write out an itinerary for your travel. Give yourself plenty of time and plan out any rest breaks or emergency stops in advance.

2. Get comfortable.

Pack a snuggly jumper, fluffy socks, and whatever else you need to get cosy. I like to bring a soft, lightweight scarf, so that I can use it as a blanket when it gets chilly. Wear comfy clothes and consider taking an extra pair of shoes that slip on and off. If you’re spending a good few hours on the plane, you need to do it in comfort, otherwise you’ll regret it later.

3. Pack your pills properly.

Make sure you have everything you need in your hand luggage (just in case), and bring all of your appropriate prescriptions as proof. Remeber to pack extra in case you run out or lose some. All of this means that can you can guarantee that you won’t lose them in the hold, and you have them in case of an emergency.

4. Stay hydrated.

One of the worst things about flying is that you get reeeaaallly dehydrated. Not only does this give you a headache, but it can severely effect your body, and make chronic illnesses feel ten times worse. Make sure you pick up a bottle of water in duty free, and make the most of any free drinks you’re offered in-flight. If you’re prone to dry skin or eczema, it’s also a good idea to pack a small, travel-sized moisturiser or emollient. Furthermore, rehydration sachets are brill as a pick-me-up if you feel worse for wear, and come in handy for hot weather as well.

5. Upgrade your seat.

It’s worth thinking about paying extra for more leg room, but as a last resort, you can always ask to upgrade to an empty seat once everyone has boarded. This is usually free, as no one is going to be using the seat anyway. This is especially useful if you have joint problems, chronic pain, a weak bladder, or any physical disability, because it means you get more room for movement and easier access to the aisle and toilets.

Hopefully, this will help the next time you travel. I’d love to hear if you have any suggestions, so don’t forget to like and comment. I’ll write a few more travel posts soon, so remember to stay updated! Thanks guys x

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This will help if you feel suicidal.

Depression, Help for friends, family, and significant others, Help for sufferers, Posts, Uncategorized

Having been away on a volunteer trip for the last two weeks, I somehow managed to mess up my antidepressants. Oops. I’ve been in a bad way recently, and most of my blog is on hold for now. However, I thought it was urgent to post this, so here goes…

This is what you should do if you find yourself in a similar situation; feeling depressed or even suicidal.

1. SEEK HELP IMMEDIATELY.

Call a friend, a family member, or a helpline.

Having someone to talk to can help calm you down and rationalise what may potentially be an irrational bunch of thoughts. And besides, at least it gives you someone to rant to! Getting help can make a difference in what could potentially be a life- threatening situation.

I’ll add some useful helpline links at the bottom of this post for anyone who may need them, but a quick Google can do just as good.

2. Be mindful.

Practice breathing, focusing on your body, and acknowledging (and then dismissing) your thoughts. By spending a few minutes doing this, you can help yourself to relax and think more rationally. This is especially useful if you have no one there to help and have to rely on your self to calm down.

Another mindfulness trick I like is to count out loud three taps of my dominant thumb onto each finger of my dominant hand, starting at my pointer, working to my pinkie, and then going back along to my pointer again. Basically make a pinching motion three times with each finger and repeat until you feel calm. This helps you to focus on something physical, grounding you to the present.

3. Get to your safe space.

It is very important to find your safe space, somewhere where you can relax and feel comfortable. Often, this will be under your duvet, in the bathroom, or in another quiet place. However, if you are feeling suicidal, it is important that there is someone else available to you if you need help. I would advise that you have a ‘secondary’ safe space, at a friend’s house, for example, where you have the added benefit of another human for comfort and support.

When feeling severely depressed, this is a good method of reducing any external stimuli, which may otherwise impact any anxiety or bad thoughts that you may be experiencing.

4. Treat yo’self.

Eat your favourite food, read a book, listen to your favourite song, or watch a film. Whatever it is that helps you to feel better.

Personally, I like to hide under my bed covers (safe space) with a good book and loads of food (think: ice cream, chocolate, cheese, crisps), or I’ll run a bath and sit mindfully whilst it is filling. Locking myself in the bathroom with the noise of the tub filling gives me a chance to get away from the stress of the ‘outside world’.

Anyway, that’s all for today, but I’d like to round up by asking my usual request, let us know if you have something to share! And one last thing..

You are loved ♡

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International:

https://www.iasp.info/resources/Crisis_Centres/

https://www.befrienders.org/need-to-talk

UK only:

https://www.samaritans.org/

https://www.mind.org.uk/

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Five things I don’t need to worry about (but do anyway).

Depression, Help for sufferers, Posts

Keeping this short and sweet, here is my take on five things that most fibro sufferers will worry about at some point (but have no reason to).

1. Going out by myself.

I went through a stage last Christmas where I fainted quite a lot. I put this down to either medication, stress, or some unknown co-morbidity. Regardless, it became an issue. I couldn’t go outside without a friend or family member because I worried that I might faint. This anxiety got so bad that it caused panic attacks. I’m much better now, but I still worry when I am by myself in public.

2. What will happen if I choose to stop my meds?

I take a type of SNRI antidepressant which has a dual effect in dulling my pain and lifting my low mood. Unfortunately, these types of drugs can cause serious addictions and, if I choose to come off of them, I will have severe withdrawal symptoms. Don’t worry, I’m not an addict and I don’t have a drug problem, however my body sometimes becomes unresponsive to the drug, meaning that I have built a tolerance for it. Unfortunately, this is a common marker in predicting future cases of withdrawal syndrome. On the plus side, however, there is plenty of support available and my doctor will ensure that I withdraw as smoothly as possible.

3. What if people just think I’m lazy?

I can’t deny it, I sometimes feel like I’m just a lazy, unmotivated hypochondriac. If I think that, then what must others think? To an outsider, fibro must seem really stupid, and I’ve had loads of people judge me to be lazy (even some really close friends!). Unfortunately, it turns out that I’m not just bluffing my way out of hard work, however I’ve had way too many people comment otherwise. From overly personal queries about my finances to judgmental references about being ‘bored’ or ‘lonely’, I’ve heard it all. All I can say is this, I do get bored and I do get lonely, but I can’t really do much about it when I have no way of getting out of bed. And when it comes to finances, well, I’d be the first to jump up at the opportunity of a job, except I can’t jump up in the first place. At the end of the day, though, it doesn’t really matter as long as I am content and not harming anyone.

4. Fibro will stop me from getting a job.

Like I’ve just said, I would love to have a job. It would keep me busy, it would keep me fit, and it would keep me motivated. Most importantly, however, it would mean that I have enough money to live off. As it stands, there aren’t any jobs which are flexible enough for my disabilities. I’d like to be able to explain this to all of those judgemental people out there who have had something to say about my current lifestyle, but nobody really wants to listen. Therefore, I’m currently working towards getting a job which will be suitable, hence why I have started this blog. At the moment though, I need to get my game face on.

5. The people who matter to me will be scared away.

Well, what can I say? Over the last year I’ve had a big change in friends. Not only is this due to leaving for university, but also because those who I thought were there for me when it mattered most weren’t. On the other hand, I’ve built a beautiful family out of those who did stay, and even found my wonderful boyfriend, who has always been there for me despite the circumstances.