What is ‘pacing’ and how can it help my fibro?

Help for sufferers, Posts, Work

Plenty of people with chronic illnesses like to talk about pacing, but if you’re newly diagnosed or have only recently started looking for advice, then you might not know what this is.

Pacing is a method of coping with the fatigue-like symptoms often associated with chronic conditions such as fibro. It involves creating a broken down or spread out routine, so that tasks can be separated into smaller, more manageable chunks. This ensures that you can concentrate longer on tasks by giving yourself small rest breaks in between.

For example, I like to split up my daily chores, study sessions, and various errands by having at least five to ten minutes of nothing for every hour or so. After a while, I have a larger break, and if I’m struggling, I will increase the frequency of my breaks. If you don’t like to sit and do nothing, try doing something easy that takes little energy (mental, physical, or otherwise) and is a distraction from your task.

(N.B: From here on it gets complicated, so you might want to skip the next paragraph if you dont fancy the heavy reading!)

The next question is this; how do you figure out your rest to work ratio? Well first of all, you need to spend some time figuring out how long you can go before you lose the will to live. This is how long you can go before you need a big break. Then, try and count how many times within this you get distracted; this is how many mini breaks you need. Spread them evenly within the time frame, and aim for between five and fifteen minutes for each break. you can alter this to your taste later, if necessary.

If all of this sounds too complicated, just remember to aim for 3:9:10 (for every 3 hours, have 9 equally spaced lots of 10 minute breaks, so every 20 minutes have a break). Or, have a 10 minute break every so often if you can’t keep count. Don’t forget as well that you can mix up the same ratio for smaller or larger amounts of time, and for every 3 hours, have at least half an hour or more to recuperate.

Most importantly, though, is to remember that you aren’t aiming to get loooaaaddss done, but to work at an efficient pace that keeps you healthy and happy. If you can’t do as much as you thought, that’s okay. Just stop for the day and adjust accordingly tomorrow.

If you like my pacing method or think you have something to input, please help us all out and let us know in the comments.

Thanks for reading!

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Five things I don’t need to worry about (but do anyway).

Depression, Help for sufferers, Posts

Keeping this short and sweet, here is my take on five things that most fibro sufferers will worry about at some point (but have no reason to).

1. Going out by myself.

I went through a stage last Christmas where I fainted quite a lot. I put this down to either medication, stress, or some unknown co-morbidity. Regardless, it became an issue. I couldn’t go outside without a friend or family member because I worried that I might faint. This anxiety got so bad that it caused panic attacks. I’m much better now, but I still worry when I am by myself in public.

2. What will happen if I choose to stop my meds?

I take a type of SNRI antidepressant which has a dual effect in dulling my pain and lifting my low mood. Unfortunately, these types of drugs can cause serious addictions and, if I choose to come off of them, I will have severe withdrawal symptoms. Don’t worry, I’m not an addict and I don’t have a drug problem, however my body sometimes becomes unresponsive to the drug, meaning that I have built a tolerance for it. Unfortunately, this is a common marker in predicting future cases of withdrawal syndrome. On the plus side, however, there is plenty of support available and my doctor will ensure that I withdraw as smoothly as possible.

3. What if people just think I’m lazy?

I can’t deny it, I sometimes feel like I’m just a lazy, unmotivated hypochondriac. If I think that, then what must others think? To an outsider, fibro must seem really stupid, and I’ve had loads of people judge me to be lazy (even some really close friends!). Unfortunately, it turns out that I’m not just bluffing my way out of hard work, however I’ve had way too many people comment otherwise. From overly personal queries about my finances to judgmental references about being ‘bored’ or ‘lonely’, I’ve heard it all. All I can say is this, I do get bored and I do get lonely, but I can’t really do much about it when I have no way of getting out of bed. And when it comes to finances, well, I’d be the first to jump up at the opportunity of a job, except I can’t jump up in the first place. At the end of the day, though, it doesn’t really matter as long as I am content and not harming anyone.

4. Fibro will stop me from getting a job.

Like I’ve just said, I would love to have a job. It would keep me busy, it would keep me fit, and it would keep me motivated. Most importantly, however, it would mean that I have enough money to live off. As it stands, there aren’t any jobs which are flexible enough for my disabilities. I’d like to be able to explain this to all of those judgemental people out there who have had something to say about my current lifestyle, but nobody really wants to listen. Therefore, I’m currently working towards getting a job which will be suitable, hence why I have started this blog. At the moment though, I need to get my game face on.

5. The people who matter to me will be scared away.

Well, what can I say? Over the last year I’ve had a big change in friends. Not only is this due to leaving for university, but also because those who I thought were there for me when it mattered most weren’t. On the other hand, I’ve built a beautiful family out of those who did stay, and even found my wonderful boyfriend, who has always been there for me despite the circumstances.