What is ‘pacing’ and how can it help my fibro?

Help for sufferers, Posts, Work

Plenty of people with chronic illnesses like to talk about pacing, but if you’re newly diagnosed or have only recently started looking for advice, then you might not know what this is.

Pacing is a method of coping with the fatigue-like symptoms often associated with chronic conditions such as fibro. It involves creating a broken down or spread out routine, so that tasks can be separated into smaller, more manageable chunks. This ensures that you can concentrate longer on tasks by giving yourself small rest breaks in between.

For example, I like to split up my daily chores, study sessions, and various errands by having at least five to ten minutes of nothing for every hour or so. After a while, I have a larger break, and if I’m struggling, I will increase the frequency of my breaks. If you don’t like to sit and do nothing, try doing something easy that takes little energy (mental, physical, or otherwise) and is a distraction from your task.

(N.B: From here on it gets complicated, so you might want to skip the next paragraph if you dont fancy the heavy reading!)

The next question is this; how do you figure out your rest to work ratio? Well first of all, you need to spend some time figuring out how long you can go before you lose the will to live. This is how long you can go before you need a big break. Then, try and count how many times within this you get distracted; this is how many mini breaks you need. Spread them evenly within the time frame, and aim for between five and fifteen minutes for each break. you can alter this to your taste later, if necessary.

If all of this sounds too complicated, just remember to aim for 3:9:10 (for every 3 hours, have 9 equally spaced lots of 10 minute breaks, so every 20 minutes have a break). Or, have a 10 minute break every so often if you can’t keep count. Don’t forget as well that you can mix up the same ratio for smaller or larger amounts of time, and for every 3 hours, have at least half an hour or more to recuperate.

Most importantly, though, is to remember that you aren’t aiming to get loooaaaddss done, but to work at an efficient pace that keeps you healthy and happy. If you can’t do as much as you thought, that’s okay. Just stop for the day and adjust accordingly tomorrow.

If you like my pacing method or think you have something to input, please help us all out and let us know in the comments.

Thanks for reading!

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My latest obsession

Posts, Uncategorized

So I have a confession to make…

I have a bit of an addiction to houseplants. They’re pretty, easy to look after, and university friendly. What could possibly go wrong? Well…

Here’s the thing: having fibro means that you often do silly things out of boredom, and very easily create obsessions to occupy the time when you’re stuck in bed. I got a bit of an obsession with all of the pretty houseplants that I’d seen on Tumblr and Pinterest, and it got a slightly out of hand. Every time I saw an interesting plant, I had to buy it. I spent a FORTUNE.

It doesn’t make it any better that I miss my animals whilst I’m away at university, so I’ve replaced them with a windowsill full of greenery (well I had to find SOMEWHERE to put my affections, right!?). Having plants gives me something to do when I feel well, and something to look at when I’m not. The best bit is that you can choose plants that rely on very little water, so that you don’t have to spend too much time on maintenance, especially when you’re poorly.

Anyway, house plants are pretty good for fibro sufferers (much easier than a dog) and also for tenants who aren’t allowed pets, but they can get pretty expensive. I daren’t tell you how much I’ve spent perfecting my windowsill!

If you fancy starting your own collection, look into buying cacti, succulents, and other common houseplants that require low maintenance. You can pick them up from all over nowadays, most of mine are from my local Lidl supermarket, and I’ve even got a few from the carboot. If you want a good deal, look out for the plants that look a little bit worse for ware. As long as they still have healthy growth and aren’t too far gone, you can usually bring them back to life. My favourite part about that is that the shop usually wants rid of the ones that aren’t doing well, because they are less likely to sell, so you can normally get them at a reduced price.

My favourite plant from my own personal bunch is a spider plant. It fills out the space in my room and, best of all, sprouts loads of new growths. This means that I can snip them off and pot them up, thus giving me loads of new little ones (yay!). I’m currently waiting for my ten spider plant babies to grow a little so that I can pot them nicely and send then as gifts to the people I love.

Let us know if you have any interesting hobbies that are fibro friendly, because it’s great to have an obsession when you’re stuck in bed feeling low. Also, if you have any houseplants that you care for, I’d love to hear your advice. Last but not least, don’t forget to like and comment so I know I’m posting the good stuff!

Beat back the fog in five simple steps

fibro fog, Help for sufferers, Posts

Having fibromyalgia has many a downside, but one of the most irritating (and most overlooked) issues of the condition is fibro fog. From losing your glasses (check the top of your head) to forgetting an important appointment, the fog ruins us all at some point. Here are five simple steps to get the worst of it under control…

1. Establish a routine.

If you set a daily routine, it helps to keep track of those pesky things that love to disappear, such as your glasses and keys. I like to leave my keys in the same place each day so that I know that they will definitely be there when I need them. Likewise, checking for That Important Thing every time you do a certain task can help to set up a routine.

2. Set reminders on your phone.

I ALWAYS forget to take my meds, as in, I forget my meds every. single. day. To combat this, I have two reminders set on my phone, one at my usual wake up time, and one a few hours later, just in case. Honestly, it’s the best thing I’ve ever done, and it’s prevented countless numbers of flares.

3. Invest in a diary, journal, or planner.

Planners are useful for getting down those daily events that often slip your mind, and getting a little pocket diary means that you can take it everywhere for when you need it the most. Appointments, anniversaries, contacts, and to do lists can all be jotted down, and you can even take note of any important symptoms or fibro issues that you think are important. This way, you have an ‘external hard drive’ for your brain.

4. Load up on post it notes.

If there’s something you know you will forget, there’s nothing better than a huge glowing sign to remind you. Although not quite huge or glowing, an easy trick to help you to remember something is to leave your future self a post it. They have the added benefit of being colourful, sticky, and small enough to take with you, so you can use them anywhere and anytime. Write down a quick message and stick it where you’re sure to see it (mirrors, doors, the kettle, your fave snack).

5. Learn to ‘pace’.

Pacing is a technique often used by people with chronic illnesses which allows them to function for longer. Although it primarily helps with fatigue, it is also good for curbing mental exhaustion and cloudiness. Set out daily goals with steps towards each one, but make sure that they are small and achievable with breaks in between. Remember, set yourself a limit and do not exceed it. This way, you are less likely to spur on any foggy moments that would usually be caused by tiredness.

Have you got any of your own ideas? Let us know in the comments and don’t forget to like the post so I can see that I’m not just talking to myself *awkward laughter*.

Six tips for a Sufferer’s S.O.

Help for friends, family, and significant others, Posts

It’s difficult to know what fibro is like when you don’t actually have it, and plenty of people have asked me what I would like them to do to help, because they simply don’t know what I need. I’m going to share some tips; for best friends, parents, siblings, significant others, and anyone else who wants to help. I think you’ll find that most sufferers will appreciate it.

1. Educate yourself!
Nothing is quite as powerful as knowledge, and one of the most simple and inexpensive things that you can do to help is to learn a little about the illness. Read up on the symptoms of fibro, have a look into common pain management techniques, and find some articles about current research. I can almost guarantee that your fibro sufferer will love the effort that you have gone to in educating yourself about their illness.

2. Ask questions.
Some people don’t like others prying on the state of their health, but most fibro sufferers will agree that it’s nice to clear the air. It is difficult to know what to expect when you haven’t got any experience, and who better to refer to than the person themself? Ask them if you can help in any way; maybe by carrying something heavy, putting the kettle on, or even just enjoying their company in silence when they are having a bad day. Remember though, no one wants their independence taking away, so try not to over do it too much.

3. Know when enough is enough.
Like I said previously, it is easy to smother someone when you are trying to care for them. Similarly to before, if you feel unsure, just ask.

4. Treat them like you would everyone else.
No one likes to feel belittled, and the quickest way to do that is to act as if they aren’t ‘normal’. Of course, nobody is normal, really, but don’t change your actions towards someone simply because they have an illness.

5. Pick up after yourself.
If you live with a fibro sufferer, it can sometimes be difficult to remember that they can’t do everything that others can. This means that simple tasks around the house can get much more difficult than you think they are, and the last thing a chronic sufferer will want is to pick up their mess, let alone anyone else’s!

6. Gentle reminders can go a long way.
Many people with fibromyalgia get the notorious ‘brain fog’. Not only is this annoying, but can be potentially dangerous. One of my biggest issues is forgetting to take my meds on time, and a quick nudge from my boyfriend really helps to avoid a flare later in the day. It can also help with other forgetfulness problems, such as leaving my keys in the fridge by accident or forgetting to let the dogs outside before bed.

7. Patience is a virtue.
I can honestly say that having fibromyalgia drives me up the wall, whether it be the pesky ‘fog’, the achey muscles, or just feeling tired and miserable. I can only imagine how my poor family must feel when I snap over something silly they said or did, simply because it pushes me over the edge. Please remember that us sufferers don’t intend to be mean or bitter, but sometimes it is difficult to cope. Likewise, you may find that spending a lot of time around a grumpy, moaning, bag of bones isn’t very fun, especially if they are mid way through a flare and haven’t washed in a day or so (sorry!). If this is the case, make sure you get some ‘me’ time, and give yourself a break. Nobody blames you for getting irritated, and you will find that you appreciate your special person a lot more when you next see them. In the mean time, try to have some patience.